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We are a grass-roots group,
started in 1999, who call
ourselves "Fuchs'
Friends". Our numbers
are growing every day as we meet
new people who have just
discovered their corneal
dystrophy problem.
Originally a few of us found one
another on the Internet because
one of us (Dorothy) has a
personal website
with a page devoted to her own experience with Fuchs' Dystrophy. We
found that we were active and productive people who wanted to
contribute to bettering the lives of people who suffer from Fuchs' and
other vision afflictions. Fortunately, one of our members (Bob) had
considerable expertise in web design and Internet searching. So we
began to gather links to further information and realized we needed
our own domain name and website.
We formed a private bulletin board to share our experiences.and give
one another support. You can join this private site at no cost and
receive valuable information to help you with this affliction.
This private site supports:
email,
mail lists,
uploaded files from members
a referral data base of specialists who are recommended by
their Fuchs’ patients.
Our Fuchs’ Friends private bulletin board now has almost 1300
members and over 320 of past and present members have had a
transplant on at least one eye.
With people all over the world participating. The bulletin board has
become an information and linkage portal for finding information and
highly qualified specialists. It is also a place where Fuchs' sufferers
and medical experts can meet for support and information exchange,
while coping with this disease.
Our public websites receive over 8000 individual visitors per month
who are searching for answers to their Fuchs’ Corneal Dystrophy
questions
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