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We are a grass-roots group,
started in 1999, who call
ourselves "Fuchs'
Friends". Our numbers
are growing every day as we meet
new people who have just
discovered their corneal
dystrophy problem.
Originally a few of us found one
another on the Internet because
one of us (Dorothy) had a
personal website
with a page devoted to her own experience with Fuchs' Dystrophy. We
found that we were active and productive people who wanted to
contribute to bettering the lives of people who suffer from Fuchs' and
other vision afflictions. Fortunately, one of our members (Bob) had
considerable expertise in web design and Internet searching. So we
began to gather links to further information and realized we needed
our own domain name and website.
We formed a private bulletin board to share our experiences.and give
one another support. You can join this private bulletin board at no
cost and receive valuable information to help you with this affliction.
This private site supports:
email,
mail lists,
uploaded files from members
a referral data base of specialists who are recommended by their
Fuchs’ patients.
Our Fuchs’ Friends private message board now has almost 2000
members and more than 320 of past and present members have had a
corneal transplant on at least one eye.
With people from at least 65 countries participating the message
board has become an information and linkage portal for finding
information and highly qualified specialists. It is also a place where
Fuchs' sufferers and medical experts can meet for support and
information exchange, while coping with this disease.
Our public websites receive over 8000 individual visitors per month
who are searching for answers to their Fuchs’ Corneal Dystrophy
questions
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